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Home > Resources > Disease Specific Info/Support

Disease Specific Information & Support

We've compiled a list of links to websites that address several topics that you may find beneficial.

Just click one of the categories below to see all the links in that area of interest.

Cancer Resources

Chronic and Debilitating Diagnosis Resources

Childrens Resources

Helping Teens Cope With Illness

Mental Health Resources

Government Resources

Information & Reference

National Cancer Institute (NCI) News & Information

Pulmonary Hypertension Association (PHA)
The mission of PHA is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness. PHA is an association for the entire PH community of patients, caregivers, family and medical professionals.



Organizations
Caring Bridge
www.CaringBridge.com
A CaringBridge website is personal, private and available 24/7. It helps ease the burden of keeping family and friends informed. Patients and caregivers draw strength from loved ones’ messages of support.

National Transplant Assistance Fund
has a record of success helping families address financial hardships arising from uninsured medical expenses related to transplantation (solid organ, bone marrow, stem cell or tissue) and catastrophic injury (spinal cord or traumatic brain). Established in 1983 by medical professionals, NTAF is a 501(c)(3) nonprofit organization, with headquarters in Radnor, Pennsylvania, that provides expert fundraising guidance to patients, families and communities nationwide, while offering fiscal accountability for funds raised.
View the website

Career Counseling, Inc.
Provides free professional counseling and educational programs to cancer patients and their loved ones. Psychiatrists and social workers conduct individual, family and group sessions.
Phone: 1 (713) 520-9873

Grief Recovery Institute
Provides books and resources to help those grieving the loss of a loved one move through their grief in a healthy and safe manner.
Phone: 1 (323) 650-1234