- American Cancer Society
Address: 1599 Clifton Road
Atlanta, GA 30329Main Phone: 1-800-227-2345 Web Address: www.cancer.org
Offers numerous resources, including printed materials, counseling for patients and their families, and information on lodging for people who may require treatment far from home. Contact your local chapter to find out about resources that maybe available in your community. Local ACS office may offer reimbursement for expenses related to cancer treatment including transportation, medicine, and medical supplies. Financial assistance is available in some areas.
- Cancer Information Services (CIS) in collaboration with the National Cancer Institute
Address: PO Box 24128
Baltimore, MD 21227Main Phone: 1-800-422-6237 Web Address: www.cancernet.nci.nih.gov/cancertopics/factsheet/Information/CIS
Helps locate financial aid and/or emotional counseling services, as well as information on diagnostic procedures.
- Chai Lifeline
Address: 151 West 30th Street
New York, NY 10001Main Phone: 1-877-CHAI-LIFE, 1-212-465-1300 Fax Number: 1-212-465-1300 Web Address: www.chailifeline.org
To provide financial assistance, housing, weekend retreats programs for the entire family living with a child with cancer or catastrophic illness, weekend retreats for bereaved families, holiday trips, insurance information as well as support to Jewish children who suffer from cancer and other life threatening illnesses.
- Childhood Leukemia Foundation
Address: 1608 Route # 88 West, Suite 203
Brick, NJ 08724Main Phone: 1-732-840-7585, 1-732-840-5818 Fax Number: 1-800-CLF-7109 Email: clf4kids@aol.com Web Address: www.clf4kids.com
Provides children diagnosed with Leukemia under the age of 18 gift baskets, Toys R Us Certificates, Hip Hats, Camp Sponsorships, Valentine Parties, Wish List and Entertainment. The Childhood Leukemia Foundation will also assist in the cost of home care, transportation costs for the travel to chemotherapy or radiation treatment, and with the cost of medications. The guidelines for are flexible and are assessed individually. If there are unusually large expenses, these expenses are taken into consideration. Grants are available up to $3000.00 per patient. Please call 1-800-253-4046 for an application.
- Children's Cancer Web
Web Address: www.cancerindex.org
An independent non-profit site, established to provide a directory of childhood cancer resources with links to information on cancer, treatment, financial support, and care tips.
- Ehlers-Danlos National Foundation
Web Address: www.ednf.org
Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome. We do this by
- Creating and distributing accurate information
- Providing a network of support and communication
- Fostering and funding research
- KATIE BECKETT WAIVER Medicaid
Web Address: www.cms.hhs.gov/home/Medicaid.asp
The Katie Beckett Waiver,also known as the Deeming Waiver or the 2176 Model Waiver, is a federal waiver that is intended for children from birth to eighteen years of age with a chronic disability. It entitles children to Medicaid that would not otherwise qualify due to their parent’s financial status.
- Pediatrics
Website: www.pediatrics.org
Shared Vision: Concordance Among Fathers, Mothers, and Pediatricians About Unmet Needs of Children With Chronic Conditions This study emphasizes the need parents have for information about their child's condition and treatment and its implications for the family.
- United Way
Main Phone: 1-800-411-8929 Web Address: www.unitedway.org
A nationwide directory of information referral services. When you need health counseling, legal aid, crisis intervention, home nursing care, substance abuse counseling and treatment, transportation or daycare for child or dependent adult.
- The Ulman Cancer Fund for Young Adults
Address: 4725 Dorsey Hall Drive, Suite A
Ellicott City, MD 21092Main Phone: 1-888-393-FUND Email: info@ulmanfund.org
Website: www.ulmanfund.org
To provide support programs, education and resources, free of charge, to benefit young adults, their families and friends, who are affected by cancer, and to promote awareness and prevention of cancer.
- Wipe Out Kids' Cancer
Address: 6350 LBJ Freeway, Suite 162
Dallas, TX 75240Main Phone: 1-214-987-4668 Fax: 214-987-4668 Website: www.wokc.org
Wipe Out Kids' Cancer's mission is to eradicate pediatric cancer by funding innovative research, education and treatment, while providing hope to children affected with cancer.
- Working Against Cancer
Address: PO Box 70233
Pasadena, CA 91107Main Phone: 619-269-6767 E-mail contactus@workingagainstcancer.org
Website: www.workingagainstcancer.org
WAC's mission is to help these individuals navigate their way through the emotional upheaval that accompanies a cancer diagnosis in order to become self-reliant individuals with independent, productive lives.


