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Patient Advocate Foundation
help@patientadvocate.org
Phone: (800) 532-5274
Fax: (757) 873-8999
Home > Resources > Disease Specific Info > Chronic and Debilitating Diagnos

Chronic and Debilitating Diagnosis Resources

National Organization for Rare Disorders
Phone: (203) 744-0100
www.rarediseases.org
NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.



Crohn's Disease


Diplomat Specialty Pharmacy's Crohn's Navigator
Phone: 1.866.311.9966
www.diplomatpharmacy.com/en/patient-services/conditions/crohn-s-disease
Our Crohn's Navigator Program offers an easy, prescription solution by eliminating barriers to necessary medications and increasing drug access for both patients and their doctors.


Diabetes


The Charles Ray III Diabetes Association, Inc
Phone: (919) 303-6949
www.charlesray.g12.com
Our mission is to make a difference in the lives of people living with diabetes all over the world by providing equipment and encouragement to those in need.


Ehlers-Danlos Syndrome


Ehlers-Danlos National Foundation
Phone: (213) 368-3800
www.ednf.org
Ehlers-Danlos National Foundation creates resources for those affected by the connective tissue disorder Ehlers-Danlos Syndrome. We do this by
  • Creating and distributing accurate information
  • Providing a network of support and communication
  • Fostering and funding research



Lupus


Lupus Foundation of Minnesota
Phone: (952) 746-5151
www.lupusmn.org
Our mission is to serve those affeted by lupus, raise awareness and fund research in an ongoing effort to improve the lives of others.

Lupus Mid-Atlantic
Phone: (410 337-9000 or (800) 777-0934
www.lupusgw.org
Lupus Mid-Atlantic is committed to providing educational and psychological support to lupus patients and their families, to increasing awareness and educating the general public and health professionals about lupus, and to funding clinical and basic scientific research on lupus.

S.L.E. Lupus Foundation
Phone: (212) 685-4118
www.lupusny.org
With headquarters in New York City and offices in Los Angeles, the S.L.E. Lupus Foundation is one of the nations leading lupus organizations. It provides patient services, education, public awareness, and funding for lupus research.



Pulmonary Hypertension


Caring Voice Coalition
Phone: (888) 267-1440
www.caringvoice.org
Caring Voice Coalition seeks to empower our patients to meet these challenges through comprehensive, effective programs and a knowledgeable, caring staff. We value our reputation as a responsible, responsive organization with a unique, holistic approach to improving the lives of our patients.

Caring Voice Coalition serves people with the following chronic conditions:
  • Alpha-1 Antitrypsin Deficiency (Alpha-1)
  • Chronic Granulomatous Disease (CGD)
  • Idiopathic Pulmonary Fibrosis (IPF)
  • Pulmonary Arterial Hypertension (PAH)