Breast Cancer Resources
Breast cancer is a type of cancer originating from the breast tissue, which affects both female and male patients. Cancer is by far the top health condition reported to Patient Advocate Foundation by patient callers, with Breast Cancer consistently among the top reported.
Patient Advocate Foundation (PAF) works on behalf of patients diagnosed with chronic, debilitating and life threatening illnesses such as breast cancer. By way of a partnership with Susan G. Komen for the Cure, PAF is further working to enhance breast health and cancer-related education for all women, including the African American and Hispanic/Latino communities, and increase knowledge of PAF services and the Co-Pay Relief (CPR) program offerings.
These programs help to enable women and men access the care they need during the screening of breast cancer and/or following a diagnosis of breast cancer.
How Patient Advocate Foundation Can Help
Patient Advocate Foundation works with patients diagnosed with a chronic, debilitating, and/or life threatening illness such as breast cancer who are facing specific issues including navigating their insurance plans, gaining access to care, problems arising from their employer and/or creditor regarding insurance, as well as job retention and/or debt crisis matters. Our professional case managers specialize in mediation, negotiation, and arbitration to advocate on behalf of patients experiencing issues with access to care, job retention and debt crisis due to their illness. If you need assistance, give us a call today at 1-800-532-5274.
Financial Assistance through PAF’s Co-Pay Relief (CPR) Program
The Co-Pay Relief Program (CPR) provides direct financial support for pharmaceutical co-payments to insured patients, including Medicare Part D beneficiaries, who financially and medically qualify. Currently the PAF Co-Pay Relief Program offers a dedicated, secured web based application for patients to enroll electronically for the Co-Pay Relief Program (CPR). The CPR can be accessed by patients and providers online at http://www.copays.org or via phone at 1-866-512-3861.
Susan G. Komen for the Cure maintains a comprehensive online resource for those in their quest to understand breast cancer.
Breast Cancer Specific Related Resources
To help breast cancer patients find needed help, below are a list of additional resources and organizations that can provide further targeted and specific information as it relates to breast cancer prevention, detection, treatment and support.
Susan G. Komen for the Cure®
As the world’s largest grassroots network of breast cancer survivors and activists, we’re working together to save lives, empower people, ensure quality care for all and energize science to find the cures. Thanks to events like the Susan G. Komen Race for the Cure®, and generous contributions partners, sponsors and fellow supporters, Susan G. Komen for the Cure has become the largest source of nonprofit funds dedicated to the fight against breast cancer in the world.
American Breast Cancer Foundation
The American Breast Cancer Foundation’s mission is to provide individuals in financial need, their families and their loved ones with education, support, and access to early detection screenings.
Understanding Genetic Testing Results for Breast Cancer
If you are interested in Breast Cancer related genetic tests (BRCA1 or BRCA2), or have already had a test and would appreciate some information on how to interpret your results, this site has resources and can answer your questions. Information about how your genetic results may impact your family and their future health is presented as well.
BreastCancerTrials.org is a free, nonprofit, clinical trial matching service that can help you quickly and easily find breast cancer trials that might be right for you. BCT.org has easy-to-read trial summaries and a secure message service for contacting participating research sites. You also can sign up for their trial alert service to learn about newly added trials that match your health history.
KS Inflammatory Breast Cancer Foundation
The purpose of the Kommah Seray Inflammatory Breast Cancer Foundation is to raise awareness of Inflammatory Breast Cancer. The foundation will meet the immediate needs of active cancer patients by providing assistance and support. Additionally, the foundation will work toward educating medical professionals and the community at large on how to detect Inflammatory Breast Cancer.
Living Beyond Breast Cancer
Living Beyond Breast Cancer, founded in 1991, is a national nonprofit education and support organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life. Programs and services include: a comprehensive educational website, lbbc.org; the toll-free Survivors’ Helpline at (888) 753-LBBC (5222); large national conferences; free teleconferences; networking programs; quarterly educational newsletters; publications for medically underserved women; workshops and trainings for healthcare providers; low-cost informational recordings; and the Paula A. Seidman Library and Resource Center.
My Hope Chest Foundation
My Hope Chest provides funding for reconstruction surgery to women who have survived breast cancer but are lacking insurance or the financial means to gain their desired reconstruction. Our mission addresses the life and whole being of a woman body, mind and spirit after treatment for breast cancer as they continue their journey to a full recovery.
National Breast Early Detection Programs, Prevention and Screening Resources
There are a number of prevention and screening resources available for patients before a breast cancer diagnosis. The Centers for Disease Control and the National Breast and Cervical Cancer Early Detection Program (NBCCEDP) are just a few that offer access to free or reduced screening, and NBCCEDP program screening may also qualify you for medical care through Medicaid.
Triple Negative Breast Cancer
The Triple Negative Breast Cancer Foundation’s mission is to raise awareness of triple negative breast cancer and to support scientists and researchers in their efforts to determine the definitive causes of triple negative breast cancer, so that effective detection, diagnosis, prevention and treatment can be pursued and achieved.
National Lymphedema Network
The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, health care professionals and the general public by disseminating information on management of primary/secondary lymphedema and related disorders, and education in risk reduction practices for all individuals at risk for or affected by lymphedema.
The NLN is supported by tax-deductible donations and is a driving force behind the movement in the U.S. to standardize quality treatment for lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.
Breast Cancer Resources specific for the African American Community
Sisters Network® Inc. is committed to increasing local and national attention to the devastating impact that breast cancer has in the African American community. Sisters Network Inc. is a leading voice and only national African American breast cancer survivorship organization in the United States. The organization’s works to provide a broader scope of knowledge that addresses the breast cancer survivorship crisis affecting African American women around the country.
African American Breast Cancer Alliance, Inc (AABCA)
The African American Breast Cancer Alliance, Inc (AABCA) is dedicated to building and sharing awareness, connections, education, resources and support for African American/Black women, men, families and communities affected by breast cancer.
Breast Cancer Resources for the Hispanic and Spanish Speaking Community
Necesita Ayuda Para Sobrellevar Los Efectos Secundarios Del Tratamiento
El Instituto Nacional del Cáncer
De Los Institutos Nacionales De La Salud de EE.UU.
Dia De La Mujer Latina
Celebrando Nuestra Cultura y Navegando su Salud Desde 1997
Latinas Contra Cancer
Educaion Navegacion Y Apoyo Acerca Del Cancer Para La Poblacion Latina
Hazlo Por Tu Familia (Siler City, NC)
Immigrant Health Initiative, Chatham Hospital
Offers immigrant Latinas breast health education, breast exams, case management and aftercare lymphedema therapy. 919-663-2005
Hermanas Unidas el Contra Cancer (Cabarrus County)
704.920.1120 (English and Spanish)
Bienvenido A Una Red De Apoyo Para Las Latinas Con Cancer
Additional Cancer Resources can be found at:
American Cancer Society
The American Cancer Society is the nationwide community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
CancerCare provides free, professional support services to individuals, families, caregivers, and the bereaved to help them better cope with and manage the emotional and practical challenges arising from cancer. Our services include counseling and support groups, educational publications and workshops, and financial assistance. All of our services are provided by professional oncology social workers and are offered completely free of charge. Financial assistance programs can offer limited assistance for cancer-related costs, including transportation, child care, pain medications and lymphedema supplies. Professional oncology social workers will help match you a Cancer Care program to help.
Additional National Co-Pay Programs with Breast Cancer designated fund silos
Chronic Disease Fund
We assist patients throughout the United States who meet income qualification guidelines and have private insurance or a Medicare Part D plan but cannot afford the cost of their specialty therapeutics. Chronic Disease Fund currently supports patients with more than two dozen different diseases, including many types of cancer (breast, colorectal, lung cancer, and multiple myeloma), multiple sclerosis, asthma, and macular degeneration, to name a few. We are limited in the financial support we can provide for each disease, as it is based on the funding we raise each year through grants and contributions.
Patient Access Network Foundation
The Patient Access Network Foundation is an independent, national 501 (c) (3) organization dedicated to providing underinsured patients with co-payment assistance through 31 disease-specific funds that give them access to the treatments they need.
Patient Services Incorporated
One of the most difficult challenges that face many chronically ill patients is the high cost of co-payments. In an effort to help patients afford the cost of their co-payments, Patient Services developed a variety of financial assistance programs to help meet this need. Patient Services currently offers co-payment assistance programs in to support breast cancer patients.